In lieu of a weekly meal plan (I may regret not posting this source of accountability.), I am pleased to introduce to you a fellow food allergy blogger. Tessa blogs at Tessa, the Domestic Diva, and is a fellow host of Allergy-Free Wednesdays. Tessa’s story is so familiar to my own and many others out there. So, in her own words…
Even as a child, I was drawn to food and how it is was made. My mom spent time as a Home-Economics teacher before having three girls, so I guess it was only natural for at least one of us to want to be in the kitchen with her while she baked and created with a limited number of ingredients, and very little money. Over the years, I learned, crafted, and experimented with all sorts of recipes. But it has only been since the birth of my son that I have become a real cooking scientist: pushing the boundaries of what I knew, using completely new ingredients, and learning more than I ever thought possible.
In September of 2010, my third child was born, healthy and happy. 12 hours later, eager to get home, we tried to start checking out, and my son starting showing the first signs of infection: fever and rapid respirations. Very quickly, he was put on 2, hard-core IV antibiotics to save his life. It was a week of torment and anguish, as anyone who has ever had a sick child will know. But we went home a week later, ‘healthy.’
Almost immediately, he started with the colic symptoms. Since both of my girls were the same, I did what I did with them: cut out the dairy. When that didn’t do it, I was at a loss…..if not dairy, then what?! My brain had never been anywhere but dairy-free, where was I to go? Meanwhile, my son continued his inconsolable crying, and our family struggled. Living with a baby who cries all the time is so exhausting. And the torment! Seeing your child so obviously uncomfortable is torture. I eliminated all major allergens. Then I discovered corn was another huge catalyst for reactions.
We did major gut repairs regimes on him AND me. Hardcore probiotics, glutamine, tinctures, sacro-b…for 4 weeks, we somehow managed to get these things into his system. But there was no improvement. He regularly looked like he was in bar fights, inflamed skin, raw patches, and severe eczema. Oh the frustration when my pediatrician touted, “It’s just really dry skin, eczema.” REALLY?! I knew there was something causing it ad that I shouldn’t just stand by and let it do its thing. My son’s body was screaming: I AM NOT HAPPY.
I struggled to find doctors that could help with the next step: testing. Most allergists don’t like to test young babies as their immune systems are so immature and testing is not too accurate. I knew naturopath could help, but they aren’t covered by our insurance, and I knew all this testing was going to be pricey. But I needed somewhere to start. I found someone who knew what tests to order, but not how to interpret them. In the meanwhile, I tested my eldest child too to see if there were triggers and if elimination might help her ADD. Both kiddos had whole blood work ups to test for deficiencies, and system functions: all normal. They had IgE environmental panels: one dog, one grass. They had IgG food panels: and here we found the culprit: over 20 hits for both of them. If this wasn’t leaky gut (damaged/inflamed intestines), I didn’t know what was. Then we recently did some IgE foods and came back with flax, wheat, and peanuts for my son. Both of their stool tests came back that their lower bowels had gross over-growths of bacteria: they were inflamed. So still, all of these things are pointing to unhappy guts. BUT WHAT IS CAUSING THIS?!! We are currently with another new doctor and are hopeful he can help us heal.
So here I am today, still plugging away. Our bodies are so complex, no wonder figuring it all out can be a maddening journey of ‘maybe,’ ‘possibly,’ ‘it could be.’ There is rarely a black and white answer, just whole bunch of shades of gray.
My blog and my recipes are born from my desire to help other just like me. I know first hand how painful it is to feel like you are on an island and how it can feel like no one in your community can understand or empathize with your struggle. I know how completely overwhelming it can be when you have to think about how to feed your child so that their food not only doesn’t hurt them, but manages to nourish their growing body. And we all know it needs to taste good, otherwise, what’s the point?!
I am grateful for this online community of people on special diets. There is great comfort in knowing I am not alone. My hope is that my recipes help people enjoy food again. To see that eating well can be tasty and that it is possible. It’s inevitable that there will be bumps along the road, but I know there are many of us out there ready and willing to support you and answer your questions. Here’s to good food and LIVING your life fully.
Thank you, Tessa, for sharing your story at The Willing Cook! You are doing a fantastic job with your recipe recreations and have become invaluable to the food allergy community!
Do you have a story that you’d like to share? I am always looking for guest posts to share the story of your allergy home. Just leave a comment today and I will contact you about the details.